13-Year-Old Ayes Lives With a Shrunken Brain and Body Frozen by a Rare Disorder
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Abdul Syukur is Ayesh's father

Her name is Ayezhaniza. Sadly, her life doesn’t reflect the beauty of her name.

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At just 13 years old, Ayesh should be spending her days playing, laughing, and reciting poems at school.

Instead, she lies weak and still, her small head wrapped in medical tubes, her life hanging on hope and treatment her family can barely afford.

Ayesh has been diagnosed with Microcephaly — a brain disorder that causes the head to be much smaller than normal. Her brain did not develop properly, her body is stiff, and she has never reached the milestones most children achieve.

Since she was 6 months old, Ayesh has never been able to sit upright. She had to be treated in the NICU, undergo surgeries, and take lifelong medications just to survive.

Today, Ayesh is hospitalized again. Her condition has worsened.

Her father, Abdul, works as a construction laborer in a remote village and can only return home once a month. To afford Ayesh’s medications, Abdul and his wife Ratih often have no choice but to borrow from relatives, swallowing their pride every time.

Ratih stays by Ayesh’s side 24/7, while her three other children still need to eat, go to school, and hope for a better future.

Most of Ayesh’s medications aren’t covered by health insurance. She continues to battle high fevers, seizures, and fading consciousness, yet she is still here — still hoping, still holding on.

Her parents believe this is a matter of faith, love, and humanity.

With everything they have, they fight for Ayesh’s life, praying for a miracle for their daughter who has suffered in silence for too long.

Even the smallest contribution can make a difference. Together, let’s give Ayesh a chance at the life she never had.

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