A Rare Genetic Condition Has Left Armel Facing Stroke, Organ Issues, and Weak Immunity
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Pertubuhan Kebajikan Amal Jariyah Nur Hidayah Selangor is a non government organization who help people in need

Armel Aufa, a little girl who is now 4 years and 10 months old, has faced a life full of challenges since birth. Her story is one of survival—not just to stay alive, but to experience the joy of living despite the obstacles she and her family face every day.

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Even before she was born, Armel’s mother received heartbreaking news. At seven months pregnant, doctors confirmed that Armel had serious heart conditions, including a hole in her heart and an improperly connected aorta. After she was born, chromosome testing revealed that she had DiGeorge Syndrome—a rare genetic disorder. At just one week old, Armel began intensive treatment.

Things became even more complicated when Armel was later diagnosed with chronic lung disease, airway issues, a weak immune system, and a minor stroke that paralyzed the right side of her body.

Armel has never known the life of an ordinary child. Her days are filled with the sound of oxygen machines and medical injections. She has undergone numerous surgeries—including heart and airway surgeries, chemoport insertion, and gastrostomy. A hole had to be made in her airway to help her breathe, and now she needs to change her gastrostomy tube and chemoport regularly.

Armel’s care is not only time-consuming, but also extremely costly. Each month, her family must cover the cost of essential supplies like special milk, medical equipment, and medications—amounting to thousands of ringgit. Despite all this, Armel continues to smile, as if hiding the pain she endures each day.

Her parents are also deeply affected by these struggles. Her mother, who once had a job, was laid off in 2020 due to health issues and downsizing during the pandemic. Since then, the family’s financial burden has only increased. They often rely on help from siblings and relatives to afford Armel’s necessities—especially for larger medical expenses.

Due to financial constraints, Armel’s mother has to sacrifice her own medical appointments. While caring for Armel, both parents are also raising two other children who are still in school.

This family’s life is a continuous uphill battle—but they have never given up. Thanks to support from relatives, friends, and a few generous souls, they continue to hold on.

They now need even more support. Every contribution not only eases their financial burden, but also brings hope and strength to carry on. Their dream is simple: to give Armel a better life, even with all the limitations they face.

Behind Armel’s sweet smile is a story of pain and relentless struggle. Your help, no matter how small, can become a light of hope for Armel and her family. Together, we can help them face tomorrow with greater strength and joy.

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