This is Muhammad Harraz Waiz, a brave little boy of 4 years and 8 months who was born with Spinal Muscular Atrophy (SMA) Type 1. Harraz’s childhood should have been full of joy, but every day is a fight just to breathe. Harraz cannot move his body on his own, cannot swallow, and is fully dependent on breathing machines like BiPAP and concentrators. Every day, his mother, Nik Nurul Shuhada, must suction his airway, monitor him closely, and ensure he is safe around the clock.

From birth, Harraz appeared healthy, but his strength and mobility gradually declined. Today, he cannot lift his hands, grasp, or move like other children. He cannot speak and struggles even to swallow his own saliva. Despite these challenges, Harraz remains a fighter, showing incredible courage with every small movement and every breath he takes.

The only treatment that can slow the progression of his disease is Spinraza, administered through spinal injections, alongside intensive care and specialized nutrition like Peptamen Junior. The costs are overwhelming: Spinraza treatment alone is RM54,200, hospital fees for three sessions total RM9,000, and a year’s supply of Peptamen Junior costs RM29,400. Harraz’s mother works as a small online seller, but her income cannot cover these medical expenses. She has reached out on social media to raise funds, yet the support is still far from enough to meet Harraz’s urgent needs.

#KindSouls, your support can give Harraz a chance to continue fighting. Every donation helps provide life-saving treatments, daily care, and the specialized nutrition he needs to survive. While he cannot live without medical support, your kindness can ease his suffering and give this little fighter a chance at life.

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