Adam Qayyum is 12 years old, and he has been living with pain since the day he was born. He was born prematurely at 37 weeks, and immediately after birth, his parents noticed his skin was dry, tight, and scaly. Adam was admitted to the NICU and spent one month in an incubator due to low oxygen levels and infections, while his mother could only provide breast milk from a distance. He was later diagnosed with Lamellar Ichthyosis, a rare genetic skin condition that has no cure.

Living with Lamellar Ichthyosis means Adam’s skin is extremely fragile and easily wounded. Hot weather causes intense itching, dryness, and cracking, which leads to open wounds and scars that take a long time to heal. He often struggles to sleep at night and experiences nerve pain and constipation if his care routine is not maintained. In the past, a severe allergic reaction affected his nerves and caused him to temporarily lose the ability to walk, making careful treatment and monitoring essential for his daily life.

Although Adam’s physical growth and mental development are normal, his condition requires constant care. His parents clean his skin, apply treatments, give medication, and manage his allergies every day to reduce pain and prevent infections. Adam goes to school, but social life is challenging as many children avoid him because of his appearance, leaving him to face emotional struggles alongside his physical pain.

#KindSouls, your support can help Adam receive continuous treatment, medical care, skincare supplies, and daily necessities to reduce his pain and prevent complications. While there is no cure for his condition, your kindness can bring comfort, relief, and a better quality of life for Adam and his family.

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