Adam Qayyum, has been suffering from Lamellar Ichthyosis since birth. His skin was scaly from day one. Born prematurely at weeks 37, both his parents were devastated and heartbroken by this unexpected challenge for their newborn.
Thank you for reading this post, don't forget to subscribe!Adam had to be admitted to the NICU. His oxygen levels were low, and the risk of infection was very high. Now, Adam is 12 years old and still requires medical treatment.
As a child, Adam’s physical and mental condition was fragile. He would cry non-stop and only found peace in sleep. His body would itch from the heat, but thankfully as he grew older, his growth and mental state improved.
There is no specific cure for this disease, but it requires ongoing treatment, which comes at a high cost. His food intake must also be carefully controlled, as he can’t eat just any food. Previously, a severe allergic reaction damaged his nerves, leaving him unable to walk and even putting his life at risk.
Adam’s body is prone to wounds. Hot weather makes his skin itch severely, leading to bleeding wounds and painful sores. The dried wounds crack and leave permanent scars.
His parents have accepted their fate and continue to care for Adam with gratitude. His mother works as an assistant teacher for special needs children, and his father is a factory operator. They never stop trying and praying, but with their limited income, there are many hospital appointments they have had to miss due to financial constraints.
The challenges for Adam’s parents don’t end here. Adam’s younger sibling also has a similar skin condition. They accept this fate as part of God’s will. While there’s no complete cure, treatment can alleviate the symptoms.
At school, other students are afraid of him, some are unable to accept his ‘differences’. It saddens his parents to see their child go through such experiences.
Kind-hearted people, your support can help ease Adam’s suffering and provide him with the care he needs. Let’s help Adam!
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