“Whenever we go out, people stare and look at my daughter with disgust… It breaks my heart,” — Amani’s mother

Doctors once said Amani would only survive three months after birth — but she’s still fighting today! Thank God, despite the pain, little Amani is bravely battling her condition. However, her monthly treatment and skin care costs now reach up to $300, making it hard for the family to afford the medication she desperately needs.

Diagnosed with Harlequin Ichthyosis, Amani’s skin is extremely fragile — constantly cracking, oozing, and peeling. Her entire body is dry and scaly. During hot weather, her skin blisters and leaks fluid. At its worst, her body turns red like a burned prawn, and she suffers from unbearable pain.

Even worse, her skin bleeds unexpectedly, at any time.

There’s no cure for her condition. The medicine she takes only eases her pain — and she’ll need it for life. Without proper care, her skin will crack, bleed, and risk dangerous infections.

No child should have to suffer like this. To make matters harder, her brother Iman Lutfi also suffers from the same condition. Kind-hearted friends, could you help ease Amani’s pain by supporting her skin care and treatment?

Her parents dream of giving her complete monthly care to relieve her suffering. Let’s come together and help little Amani feel better.

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