8-Month-Old Baby’s Liver Failing From Rare Disease, Stomach Swollen to the Brink of Rupture
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Adna Sudiana is Nahwa's mother

At just 8 months old, baby Nahwa is already in a fight for her life. She’s been diagnosed with biliary atresia, a rare and deadly condition that affects just 1 in every 15,000 babies. Her bile ducts are damaged, causing her stomach to swell dangerously and her entire body to turn yellow. Without an urgent liver transplant and long-term medical care, Nahwa may not survive.

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She was born healthy, the second child of Mr. Kohan and his wife, and brought joy to their family. But just 2 days after birth, Nahwa’s skin turned yellow and her belly began to swell uncontrollably. She was rushed to a local hospital in Cirebon, where she underwent lab tests, phototherapy, and an abdominal ultrasound. Doctors quickly referred her to a larger hospital in Bandung for more advanced care.

There, her parents received the heartbreaking diagnosis: biliary atresia, a rare condition causing liver and bile duct failure. Doctors told them she needs a liver transplant urgently.

But how could a family with no financial means possibly afford this life-saving surgery?

Her father, Mr. Kohan, lost his job and now works washing motorcycles just to be close and help care for Nahwa. Despite working nearly 24 hours a day, he still can’t earn enough — the surgery costs hundreds of millions of rupiah (tens of thousands in USD). The clock is ticking, and Nahwa’s fragile body is running out of time.

Her parents have already used up all of their savings and borrowed from relatives and neighbors just to cover Nahwa’s treatments so far. Now, they are left with nothing.

Only your compassion and kindness can give baby Nahwa a second chance at life.

Please, help Nahwa receive her life-saving liver transplant and free her from this suffering.

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