Prima Dian Ariyono, 25, has lived his entire life in pain. Born with Epidermolysis Bullosa (EB), a rare genetic skin disorder, his skin is so fragile that even light contact causes blistering and open wounds. Since birth, he has endured constant pain and emotional trauma.

Prima lives in Lumajang, East Java, with his parents and younger brother. His father runs a small laundry business, and his mother stays home to care for him. The family struggles financially, and his younger brother also had to stop school.

Prima’s condition has continued to worsen with age. Now 25 years old, he weighs only 15kg and stands at just 125cm tall. At the age of 19, he lost the ability to walk entirely. His fragile body requires frequent blood transfusions due to severely low hemoglobin levels, and in 2019, he had to undergo surgery because of difficulty urinating. The emotional toll has been just as heavy—Prima once fell into a deep depression, going silent and withdrawn for eight months before his family sought help from a religious healer.

Despite everything, Prima remains cheerful and strong. But his family has sacrificed so much — even pawning their motorbike — to cover his daily wound care and medical needs.

They now need your help to continue his treatment and give him comfort and hope.

Your donation could bring relief to Prima and help him live a life with less pain.

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