“My son was born healthy, but after a high fever, his head started growing bigger. Now, Maulana can only lie down because he has hydrocephalus…” — Siti, Maulana’s mother
Maulana Irwansyah, a 15-year-old boy, suffers from hydrocephalus — a rare condition that causes his head to enlarge up to three times its normal size. Today, Maulana can no longer speak, sit, or walk. For the past 15 years, he has spent his life lying on the bed, with a fragile body and a head that keeps growing.
Every day, his mother, Siti, sells bracelets and grave flowers by the roadside. Sometimes, she carries Maulana with her because there’s no one else to look after him. Her small income is far from enough — there are days when she can’t even afford Maulana’s milk or diapers.
Maulana has already undergone three surgeries, but none have succeeded. Now, he still needs milk and vitamins to keep his body strong. However, Siti’s small stall is often empty, leaving her struggling to care for her son alone.
Let’s help Maulana get the nutrition and care he needs to stay strong.
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